Zoe Clothier
Academic and research departments
School of Health Sciences, Faculty of Health and Medical Sciences.About
Biography
I work part time as a Research Assistant in the Cancer Cluster (School of Health Sciences). I am working with Dr Jenny Harris and Prof Jo Armes on a project that aims to use a co-design method to create an evidence-based care package, which includes a staff training toolkit, and a psychosocial care patient-report experience measure (PREM). I am also exploring the implementation of patient-reported outcomes (PROs) in head and neck cancer care, and another project investigating chemotherapy and quality of life in dogs.
Alongside Prof Armes and Dr Harris, I am also collaborating with Prof Christian Heiss (School of Biosciences) to investigate peripheral artery disease (PAD). PAD is a long-term condition affecting the limbs, particularly the legs, and is associated with adverse physical and psychological outcomes. Its vague and often asymptomatic presentation compounds with poor understanding among the public, patients and health professionals means diagnoses are often prolonged or missed, so specifically our aim is to explore how the diagnostic pathway for people with this long-term condition and outcomes/wellbeing could be improved. We have set up a Public and Community Involvement and Engagement (PCIE) group to ensure our research aligns with the needs identified by those with lived experience of PAD. I also sit within the Long Term Conditions Cluster and Digital Health Cluster as part of this work. More broadly I am a member of the Workforce Organisation and Wellbeing (WOW) Cluster.
I previously worked part time in the School of Psychology (University of Surrey) first as a Research Assistant and then as a Research Fellow. Here I was involved in two projects; the first explored burnout and wellbeing in healthcare professionals (January-September 2022); for this project I had a poster accepted at the European Association of Work and Organisational Psychology conference (May 2023). My other project looked at work-related rumination/switching off from work and sleep quality in schoolteachers (September 2022-November 2023).
My qualifications
Publications
Patient Reported Experience Measures (PREMs) are instruments that capture patients’ perspectives of health care services and offer insight into the perceived quality of care and identify areas for improvement. This rapid review aimed to identify and evaluate existing PREMs that explore patients’ experiences of psychosocial cancer care, describe their conceptual content and assess the quality of their development. Databases (MEDLINE and PsycINFO) were searched from January 1995 to January 2023. Eligible papers included PREMs developed or tested in adult cancer populations. The psychosocial content of concepts assessed by PREMs were mapped and the quality of their development assessed using the Quality Assessment Checklist (QAC). Twenty-three articles describing the development of 20 PREMs were identified. The content of these PREMs varied in terms of psychosocial domain coverage and the rigour of the development process. Quality assessment indicated that whilst instruments were well-developed, psychometric testing at this stage was less thoroughly reported on. Several patient-reported instruments are available to measure patients’ psychosocial cancer care experiences; however, these differ in content and thoroughness. The choice of instrument used by researchers will therefore depend on research or clinical objectives and on striking a balance between comprehension and length. Limitations of this review are discussed. •Many patients need psychosocial support during their cancer care.•It is important to measure patient’s views of their psychosocial care experiences.•Our review identified 20 cancer patient reported experience measures (PREMS).•PREMs varied in their scope, content, and methodological quality.•Future research should evaluate PREMs capacity to improve care experiences.