How the Shape Research, Change Lives project handles your personal data

The Shape Research, Change Lives project seeks to document the current portfolio of research on Down syndrome (DS), Fragile X syndrome (FXS) and Williams syndrome (WS), and to compare this with the priorities for research of the DS, FXS, and WS communities. We report key findings and recommendations. For more information you can contact Prof Emily Farran at e.farran@surrey.ac.uk

The Shape Research, Change Lives project is a collaboration between the University of Surrey, University College London and Oxford University. 

The University of Surrey is registered as a Data Controller with the Information Commissioner’s Office (our notification number is Z6346945), and we are committed to ensuring that the data we process is handled in accordance with data protection legislation.

We have a Data Protection Officer who can be contacted via dataprotection@surrey.ac.uk.

One of our responsibilities is to tell you about the different ways we collect and use your personal data. This statement provides details about these uses. In addition to this statement, you may be given further information about the uses of your personal data when you use certain services offered by the University of Surrey.